Share your thoughts

It can be a relief to share your thoughts and worries with other people.

It can be a relief to share your thoughts and worries with other people.

It is possible to maintain a good working life with PAP. If you are in doubt about your job, it can be a relief to share your thoughts and worries with other people.

Your doctor

It is a good idea to talk to your doctor about your condition and any challenges it may pose in connection with your job. Some jobs and tasks may have a negative influence on your condition, for instance if you work in a dusty environment, or if you have a physically demanding job. Other jobs may be perfectly unproblematic.

Read about how to maintain quality of life in general

Your employer

Explore the opportunities you have at your workplace. You may find it useful to examine your employee handbook and talk to your superior or the human resource department. It is a good idea to prepare for this talk. You may also want to consider the amount of information you want to reveal to your employer about your condition.

As a preparation exercise, try to consider the support or changes you need at the workplace to be able to maintain a good working life. By identifying your need for change or support, you form a good starting point for a constructive and solution-oriented dialogue. Small changes may have a great impact. For instance, if your condition makes it difficult for you to get up and get started in the morning, it may be of great value to you to be allowed to start your workday later.

Perhaps you need your workload to be reduced, for instance by cutting the number of tasks that require physical work, having shorter work days or a weekly day off? Or maybe you need your work station to be adjusted or need assistive technology?  Many people living with a chronic condition also find it helpful to avoid short deadlines, which can be stressful in periods where they are ill, and to have a flexible schedule which makes it easier to take time off in relation to follow-up appointments at the hospital.

Read about a good working life

Your social worker

The rules obviously vary from country to country but if you have the possibility, it might be a good idea to talk to a social worker. A social worker may help you identify and define the areas in which you need support, which tasks are difficult for you due to your condition and which are not, etc. Your social worker may also visit your workplace and maybe identify opportunities that you and your employer have overlooked.

If you have an increased risk of sickness absence due to your condition and you are worried you may lose your job, your social worker can also help you determine whether it is possible for your employer to be compensated for long-term sickness absence.

This website is sponsored by Savara Pharmaceuticals