Personal stories

Get ideas, words of encouragement, and tips from people like you who are living with PAP. Everybody has a personal story to tell.
You can find some of them here.

Moritz, Relative

When Moritz was only 6 years old, his mother was diagnosed with PAP. He does not remember her getting the actual diagnosis, but he recalls the sudden change in his family’s everyday life and that he often felt sad.

Jacqui, Patient

Married and the mother of two. A quite normal situation for a woman in her 30s. But Jacqui is living with a disease far from normal – pulmonary alveolar proteinosis (PAP). And it reared its ugly head at the worst time possible.

Paul, Patient

You wouldn’t think that Paul had any kind of illness. He is the father of three; he works full time and plays golf in his spare time. When diagnosed with pulmonary alveolar proteinosis (PAP) Paul’s main focus was to get on with his life and work – and after some time he did.

Julie, Patient

Julie looks like any 15-year old girl. She attends school, goes out with her friends and is in to musical theatre. But in spite of her young age, Julie has been hospitalized several times and gone through five lung lavages after being diagnosed with pulmonary alveolar proteinosis (PAP).

Elisabeth, Relative

When Elisabeth’s daughter, Julie, was diagnosed with pulmonary alveolar proteinosis (PAP) at the age of 11 it turned Elisabeth’s life upside down. Four years and five lung lavages later Elisabeth is happy to say that Julie is feeling better than ever.

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